Friday, April 24, 2015

Drug Study-- Observations, Friday 4/24



My husband and I are so eager for this medicine to work.  Are we over expectant of changes?

TsukiMoon has been on this medicine for exactly one week.  The drug is supposed to help a select group children who have autism with their symptoms.  Not foreseen to help all children with autism the question is our son in the category which is possitively effected?  What I can say with surety is that there has been a difference.  Is it better?  Initially it seemed so, but there also seems like there is some regression.

What could be going on?  Does TsukiMoon feel the changes and is scared of the new behaviors and wants to go back to something that he is comfortable with?  Part of the problem with my analysis is that I'm on a retreat this weekend and even though he is super happy to have a weekend with only him and his dad, it is a change, never an easy transition.  

The past week he has been so excited, so energetic that he hasn't done his usual routine of going to the toilet 3 times before going to bed, leading to a wet bed everynight this week.  Before this I would have said that we were about done with bed wetting.

Also in the past two days there has been some language regression.  A big deal becasue we have worked so hard over the past year to bring his langauge up.  He has gone from an evaluated 4/5 year-old level to a neurotypical 8/9 year-old level-- in one year.  To go back to 2 and 3 word sentences would we heart-breaking

This autism thing can be so challenging.  What works?  It is like we are shooting in the dark to find solutions.  There is so little information.  We are making it up on what seems like a best guess. 

1 comment:

  1. Thank you for being willing to give this medicine a try and are documenting the results through blogging. I am unsure whether or not I'll try meds with my own nine-year-old son who has autism. I am concerned about possible side effects. It is good to hear from other parents the pros and cons.

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