Drug Study--Update

Boo

We got the news on Friday that we had received a placebo for the past 4 weeks.  This was no surprise to anyone, including TsukiMoon.  Dr. Harden who's running the trial asked, "what do you think you got?"  Mr. TsukiMoon, TsukiMoon, me, and Robin, the study liaison, where all in the room with the doctor.  The doctor immediately followed up with another question, "any less anxiety?"  To which Tsuki answered, "No."  Robin made a small frown of sadness when he said that. 

These issues are real.  Our son is sad and knows that he is sad.  He knows that he has a hard time leaving us, just to go to school.  It would be nice to have some solutions.  We do a lot of interventions that are paying off making him a happier, better integrated person but TsukiMoon has a ways to go to overcome fear.

TsukiMoon found out that he gets paid $20 each visit, shortly before our meeting with Dr. Harden.  Robin ask our son if he what would he think if he found out he was using the placebo.  (We have had the placebo we have the option of continuing with the real medicine.)  To which TsukiMoon answered, "yes!  Because then I get $80 more dollars!"  (Visit Robin once a week for the next 4 weeks, just like we did on the placebo.  I can see visions of Legos dancing in his head.)  When Dr. Harden asked if we would like to continue with the real thing after finding out about the placebo, Mr. TsukiMoon and I looked at our son and let him answer the question.  He answered, "Yes"

No small thing to say yes.  He has an hour and half of testing, a weekly blood draw, a weekly physical check-up, and blasting himself up the nose twice a day with meds.  But he is better and better at the blood draw, the trickiest thing for him (understandably).

So here we go.